Rare Disease Day 2012


Rare Disease Day 201229 February 2012 is Rare Disease Day … and also my birthday.

Something that I don’t normally make public but, considering the importance of the event, have decided to do now is let people know that I suffer from a rare, and sometimes debilitating, disease myself.  I’m ‘coming out of the closet’ (so to speak) about my own illness because hopefully, by doing so, it may help raise awareness of other people’s issues.

So, to help to raise awareness for patients, families and carers living affected by rare diseases worldwide I’m going to be posting (hopefully) interesting information until the end of February – I will keep a list and link of all related posts right here, for easy access (if you want to bookmark this one to find them all … kind of like the one ring, but without ll the angst).

I am also going to try to do more … maybe on the 29th itself … so watch this space!

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Blog posts:

Rare Disease Day 2012 – http://jayfaulkner.com/blog/archives/442

Truth and acceptance – Rare Disease Day post – http://jayfaulkner.com/blog/archives/451

The difference a day brings – Rare Disease Day post – http://jayfaulkner.com/blog/archives/456

In the beginning – a Rare Disease Day post - http://jayfaulkner.com/blog/archives/463

Let it fall – a Rare Disease Day Post – http://jayfaulkner.com/blog/archives/466

Butterflies and Battleaxes – a Rare Disease Day Post – http://jayfaulkner.com/blog/archives/483

Ataxia – a Rare Disease Day Post – http://jayfaulkner.com/blog/archives/487

Jigsaw – a Rare Disease Day post – http://jayfaulkner.com/blog/archives/496

Limits – a Rare Disease Day post – http://jayfaulkner.com/blog/archives/502

Perspectives – a Rare Disease Day post – http://jayfaulkner.com/blog/archives/513

Experiences – a Rare Disease Day post – http://jayfaulkner.com/blog/archives/516

Disability – a four letter word? – a Rare Disease Day post – http://jayfaulkner.com/blog/archives/519

The Curious Psychology of “Disability” – a Rare Disease Day post – http://jayfaulkner.com/blog/archives/522

A rant – a Rare Disease Day Post – http://jayfaulkner.com/blog/archives/525

Inexplicable – a Rare Disease Day post – http://jayfaulkner.com/blog/archives/542

The Pen – a Rare Disease Day Post – http://jayfaulkner.com/blog/archives/551

An Open Letter – a Rare Disease Day post – http://jayfaulkner.com/blog/archives/558

On Angels’ Wings – a Rare Disease Day post – http://jayfaulkner.com/blog/archives/564

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If you are affected by a rare disease, or you know someone who is, please feel free to contact me if you would like to share your experience on here as that would be more than welcome!


@rarediseaseday #raredisease