Around we go again.

Plus ça change, plus c’est la même chose … or, to put it another way, I’ve just come off ANOTHER trip on the magic roundabout.

This respiratory specialist – after months and months of test after test – confirms that I have muscular weakness (so restricted lung function and diaphraghmatic weakness) that would be asscoiated with the genetic condition BUT also thinks that I still have asthma too (aggreivated by a raft of allergies, some of which I knew about some I didn’t).

Last respiratory specialist said there was definitely no asthma and all symptoms were purely down to the genetic condition.

One before that said that there was definitely no asthma but had no idea about the genetic condition so was bemused by the symptoms.

Before that the previous respiratory specialist said all symptoms were down to asthma but had no idea about the genetic condition.

… next one will prpobably say it is because I have gills, or something like that!

You know I realise, completely, that my medical condition (or conditions) are both complicated and complex, and that the effects are subtle most of the time which makes it extremely hard to narrow down and give a firm diagnosis. However it would be nice, just for once, to at least have a small part of the overall picture that doesn’t keep changing!