Myasthenia and me.

The month of June is Myasthenia Awareness Month. During the month of June, the Myasthenia community comes together to raise awareness about the condition, as well as to promote research and fundraising to support individuals with Myasthenia.

As well as, for me, causing my muscles to be weaker than normal, fatigue faster, cramp and spasm, my respiratory muscles to be particularly weal, and my diaphragm to have prominent weaknesses …and of course, let’s not forget, a life threatening allergy to anesthetic my Myasthenia also causes my voice to slur when I’m particularly tired or weak making me sound drunk (I don’t even drink πŸ™‚ ) and making it harder to swallow some food and drink.

One outward sign … because its easier to hide the muscle weakness, even with walking aids πŸ˜‰ … of my Myasthenia, is my face and eye. My facial muscles are weaker on one side, so smiling is actually harder, and one eye drops.

This is called Ptosis.

Ptosis is when the upper eyelid droops over the eye. The eyelid may droop just a little, or so much that it covers the pupil (the black dot at the center of your eye that lets light in). Ptosis can limit or even completely block normal vision.

This used to really annoy me. I used to wear sunglasses everywhere; I mean I actually am really light sensitive (different part of medical complexity) but I’d never be seen without my sunglasses on my head, if not my face. Often, at work, I’d be asked if I was having a stroke by well meaning people, or if I’d been punched in the face πŸ™‚

Now I just try to not let it bother me as much.

…some days I succeed. πŸ™‚

This is Myasthenia.

This is me.

#myastheniagravisawareness #Myasthenia #disability #cms #mg #ptosis