The month of June is Myasthenia Awareness Month. During the month of June, the Myasthenia community comes together to raise awareness about the condition, as well as to promote research and fundraising to support individuals with Myasthenia.

As well as, for me, causing my muscles to be weaker than normal, fatigue faster, cramp and spasm, my respiratory muscles to be particularly weal, and my diaphragm to have prominent weaknesses …and of course, let’s not forget, a life threatening allergy to anesthetic my Myasthenia also causes my voice to slur when I’m particularly tired or weak making me sound drunk (I don’t even drink 🙂 ) and making it harder to swallow some food and drink.

One outward sign … because its easier to hide the muscle weakness, even with walking aids 😉 … of my Myasthenia, is my face and eye. My facial muscles are weaker on one side, so smiling is actually harder, and one eye drops.

This is called Ptosis.

Ptosis is when the upper eyelid droops over the eye. The eyelid may droop just a little, or so much that it covers the pupil (the black dot at the center of your eye that lets light in). Ptosis can limit or even completely block normal vision.

This used to really annoy me. I used to wear sunglasses everywhere; I mean I actually am really light sensitive (different part of medical complexity) but I’d never be seen without my sunglasses on my head, if not my face. Often, at work, I’d be asked if I was having a stroke by well meaning people, or if I’d been punched in the face 🙂

Now I just try to not let it bother me as much.

…some days I succeed. 🙂

This is Myasthenia.

This is me.

#myastheniagravisawareness #Myasthenia #disability #cms #mg #ptosis

So woke up to a short story acceptance and exchange of contracts; had fun writing this and am looking forward to seeing it in the wild 😉

It’s going to be part of an anthology of drabble – stories which are exactly 100 words – coming out from Black Hare Press later this year called ‘666 – Dark Drabbles’ and it’s edited by D. Kershaw.

writing #flashfiction #anthology

The month of June is Myasthenia Awareness Month.

#Myasthenia is a neuromuscular disorder that weakens the skeletal muscles responsible for movement by impairing the connection between the nerves and muscles. 

#disability #diversity #accessibility

When John is taken to ‘lover’s lane’ by his crush, the high school quarterback, he thought all of his dreams’d come true.

But human sacrifice and demons were more of a nightmare…

Free story for #Pride2021

#flashfiction #LGBTQ #DnD #WritingCommunity

King Solomon was granted dominion over the birds, humans, and the jinn. He ruled through the power of a mighty ring.

But not all the jinn were obedient to Solomon the Wise. There was one who plotted against him in secret.

A thread on the jinn usurper-

— Ali A Olomi (@aaolomi) March 31, 2021