[Guest post] Butterflies and Battleaxes – a Rare Disease Day Post

Rare Disease Day 2012“We delight in the beauty of the butterfly, but rarely admit the changes it has gone through to achieve that beauty.”  ~Author Unknown

They say that a picture can paint a thousands words, don’t they?  Well, today, I want to let Mercedes’ words paint a picture for you … a picture that I am sure you will agree is beautiful not despite of, but because of, everyt change, metamorphosis and discovery made along the way.

Butterflies and Battleaxes ~Mercedes M. Yardley

 

 

Williams Syndrome logoWilliams Syndrome is a rare genetic condition that occurs in about 1/10,000 births. It occurs randomly across both genders and all ethnicity. It has a myriad of medical and developmental problems, including hypercalcemia, aortic stenosis, pulmonary stenosis, low birth weight and weight gain, characteristic facial appearances, hyperacusis, musculoskeletal problem, hernias, kidney problems, dental abnormalities, irritability, a starburst or lace pattern on the eyes, problems with sleeping, blood vessel problems, excessively social personality, unusual skill in music and language, developmental delay, learning disabilities and attention deficit.
Although symptoms may be treated, there is no cure.

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Mercedes M. YardleyMercedes M. Yardley wears red lipstick and poisonous flowers in her hair. She writes whimsical horror, nonfiction, and is the nonfiction editor for Shock Totem: Curious Tales of the Macabre and Twisted.

To find out more about her please visit:  http://abrokenlaptop.com/

 

 

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If you are affected by a rare disease, or you know someone who is, please feel free to contact me if you would like to share your experience on here as that would be more than welcome!

http://www.rarediseaseday.org/

@rarediseaseday #raredisease

2 thoughts on “[Guest post] Butterflies and Battleaxes – a Rare Disease Day Post

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